SIGNIFICANCE OF REGISTER OF INCURABLE CHILDREN FOR ORGANIZATION OF REGIONAL PALLIATIVE MEDICAL CARE

Aim. To analyze the formation of pediatric palliative medical care on the basis of the register of those in need, to describe the method of its compiling and significance for further organization of pediatric palliative care in Perm Krai. Materials and methods. Regional normative-legal documents were studied, method used for compiling the register of children, requiring palliative medical care, was described, experience of work of children’s specialized palliative unit for 2014-2016 was analyzed. Results. Nowadays, pediatric palliative service is being actively formed in Perm Krai, the register of 445 children, requiring palliative care, was formed; the structure of childhood pathology was determined. The basic pathologies are: congenital malformations (50.5 %), central nervous system diseases (30.7 %), oncopathology (9.4 %), metabolic diseases (6.4 %) and other pathology (3 %). Conclusions. For further development of pediatric palliative medical care in the regions, it is necessary to work out federal documents such as: professional standards for physicians and nurses; clinical recommendations, standards and protocols of patients’ management; palliative care selection criteria, estimation of efficiency of palliative service activity.

Pediatric palliative care, register of children, organization