Epidemiology and survival of the children aged 0-14 years presenting with malignant neoplasms of the eye and its adnexa in Sankt-Peterburg

Up to 1989, the state statistical reporting in Russia did not envisage a registration of primary cases of malignant neoplasms among the children taking account of their age and sex as well as the localization of the tumours. Only since 2011, thanks to our proposal, malignant neoplasms of the eye and its adnexa became to be indicated in a separate line in the state reporting form No 7 “Information about malignant tumour morbidity”. The present publication reports for the first time in this country the selected results of the estimation of the prevalence of malignant neoplasms of the eye among the children in Russia averaged over the country’s population and extracted from the first Russian population-based cancer registry of Sankt-Peterburg functioning in accordance with the international standards. The formation of the cancer control information system including pediatric oncology is currently underway. Many specialized institutions of this country, both local and federal, provide only incomplete relevant information to the territorial cancer registries which accounts for the substantial underestimation of primary cases of malignant tumours among the children. The establishment of children’s cancer registries in the Federal districts would significantly reduce the underestimation of the primary cases of malignant tumours among the children and markedly improve the accuracy of information contained in the registration cards. The authors present for the first time the data on five-year survival of the children aged 0 - 14 years presenting with malignant neoplasms of the eye and its accessory visual apparatus taking into consideration the age and sex of the patients as well as the histological structure of the tumours at the population level over a long observation period.

epidemiology, malignant neoplasms of the eye (C69), 0-14 year old children, morbidity, survival