SCREENING FOR HEREDITARY DISEASES: A BRIEF LOOK AT DOMESTIC AND FOREIGN EXPERIENCE IN LEGAL REGULATION

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Abstract

Domestic legislation is familiar with the concept of genodiagnostics, however, the most important issues related to its conduct (about permitted and prohibited to conduct varieties of genodiagnosis, guarantees of non-discrimination and confi dentiality following this procedure, about the fate of genetic samples remaining after it) remain unresolved. Within the framework of this article, the author examines examples of the normative regulation of the issues mentioned in foreign countries, suggesting that foreign experience should be used wisely.

About the authors

A. V. Nechkin

Ural State Law University

Author for correspondence.
Email: super.nechkin@gmail.com

PhD, senior lecturer, Department of Constitutional Law,

Ekaterinburg

Russian Federation

References

  1. Захарова Е. Ю. Программы массового скрининга: технические, социальные и этические вопросы / Е. Ю. Захарова // Медицинская генетика. 2006. № . 3. С. 21–23.
  2. Баранов А. А., Альбицкий В. Ю., Иванова А. А., Терлецкая Р. Н., Косова С. А. Тенденции заболеваемости и состояние здоровья детского населения Российской Федерации // Российский педиатрический журнал. 2012. № 6. С. 4–9.

Copyright (c) 2019 Nechkin A.V.

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This work is licensed under a Creative Commons Attribution 4.0 International License.

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