SCREENING FOR HEREDITARY DISEASES: A BRIEF LOOK AT DOMESTIC AND FOREIGN EXPERIENCE IN LEGAL REGULATION

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Domestic legislation is familiar with the concept of genodiagnostics, however, the most important issues related to its conduct (about permitted and prohibited to conduct varieties of genodiagnosis, guarantees of non-discrimination and confi dentiality following this procedure, about the fate of genetic samples remaining after it) remain unresolved. Within the framework of this article, the author examines examples of the normative regulation of the issues mentioned in foreign countries, suggesting that foreign experience should be used wisely.

作者简介

A. Nechkin

Ural State Law University

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Email: super.nechkin@gmail.com

PhD, senior lecturer, Department of Constitutional Law,

Ekaterinburg

俄罗斯联邦

参考

  1. Захарова Е. Ю. Программы массового скрининга: технические, социальные и этические вопросы / Е. Ю. Захарова // Медицинская генетика. 2006. № . 3. С. 21–23.
  2. Баранов А. А., Альбицкий В. Ю., Иванова А. А., Терлецкая Р. Н., Косова С. А. Тенденции заболеваемости и состояние здоровья детского населения Российской Федерации // Российский педиатрический журнал. 2012. № 6. С. 4–9.

版权所有 © Nechkin A.V., 2019

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