Usefulness and accessibility of information on the treatment of children with congenital clubfoot: results of a survey of parents
- 作者: Kenis V.M.1,2, Baindurashvili A.G.1,2, Shpulev P.S.1, Sapogovskiy A.V.1, Melchenko E.V.1, Rustamov G.N.3, Kasev A.N.1, Rustamov K.K.4
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隶属关系:
- H. Turner National Medical Research Center for Сhildren’s Orthopedics and Trauma Surgery
- North-Western State Medical University named after I.I. Mechnikov
- N.M. Kurayev Children’s Republican Clinical Hospital
- Republican Specialized Scientific and Practical Center for Traumatology and Orthopedics
- 期: 卷 12, 编号 3 (2024)
- 页面: 327-334
- 栏目: Clinical studies
- URL: https://journals.rcsi.science/turner/article/view/272894
- DOI: https://doi.org/10.17816/PTORS634027
- ID: 272894
如何引用文章
详细
BACKGROUND: Treatment of congenital clubfoot remains controversial from both specialists and parents regarding the details of its practical application, individual effectiveness, and follow-up, rehabilitation treatment, prevention, and treatment of relapses. The assessment of parental attitudes using an online survey optimizes doctor–patient interaction. Information available to parents regarding the diagnosis and treatment of children with congenital clubfoot is lacking.
AIM: This study aimed to assess the usefulness and accessibility of information for parents about the treatment of children with congenital clubfoot.
MATERIALS AND METHODS: To assess the usefulness and accessibility of information about the treatment of congenital clubfoot, a survey of the patients’ parents was conducted using an electronic fillable form proposed for anonymous completion in a thematic group dedicated to the treatment of congenital clubfoot on the social network “VKontakte”; the study included 5500 participants at the time of the survey (2 weeks), with 328 responses received.
RESULTS: Most parents noted a lack of information regarding clubfoot treatment before it actually began. The preferred source of information was Internet resources (i.e., websites of medical institutions and social networks). Achilles tenotomy and wearing braces raised the most questions, requiring additional information from both doctors and alternative sources. The possibility of errors and complications in wearing braces caused the greatest concern among parents, as well as possible relapses and the correctness of prescriptions during the rehabilitation treatment. Online parent communities and physician blogs are considered significant information sources. Most parents prefer to expand information about congenital clubfoot on the Internet, including social networks and popular resources.
CONCLUSIONS: Analysis of the results of an anonymous survey of parents of children with congenital clubfoot showed a significant demand for high-quality, accessible information regarding the diagnosis, treatment, and rehabilitation of children with congenital clubfoot. Significant interest in the information provided by social media and other Internet resources determines the need for competent representatives of the professional community to participate in this process.
作者简介
Vladimir Kenis
H. Turner National Medical Research Center for Сhildren’s Orthopedics and Trauma Surgery; North-Western State Medical University named after I.I. Mechnikov
编辑信件的主要联系方式.
Email: kenis@mail.ru
ORCID iD: 0000-0002-7651-8485
SPIN 代码: 5597-8832
MD, PhD, Dr. Sci. (Medicine), Professor
俄罗斯联邦, Saint Petersburg; Saint PetersburgAlexey Baindurashvili
H. Turner National Medical Research Center for Сhildren’s Orthopedics and Trauma Surgery; North-Western State Medical University named after I.I. Mechnikov
Email: turner011@mail.ru
ORCID iD: 0000-0001-8123-6944
SPIN 代码: 2153-9050
MD, PhD, Dr. Sci. (Medicine), Professor, Member of RAS, Honored Doctor of the Russian Federation
俄罗斯联邦, Saint Petersburg; Saint PetersburgPavel Shpulev
H. Turner National Medical Research Center for Сhildren’s Orthopedics and Trauma Surgery
Email: pavel_shpulev@mail.ru
ORCID iD: 0009-0004-1327-6759
PhD student
俄罗斯联邦, Saint PetersburgAndrey Sapogovskiy
H. Turner National Medical Research Center for Сhildren’s Orthopedics and Trauma Surgery
Email: sapogovskiy@gmail.com
ORCID iD: 0000-0002-5762-4477
SPIN 代码: 2068-2102
MD, PhD, Cand. Sci. (Medicine)
俄罗斯联邦, Saint PetersburgEvgenii Melchenko
H. Turner National Medical Research Center for Сhildren’s Orthopedics and Trauma Surgery
Email: emelchenko@gmail.com
ORCID iD: 0000-0003-1139-5573
SPIN 代码: 1552-8550
MD, PhD, Cand. Sci. (Medicine)
俄罗斯联邦, Saint PetersburgGusein Rustamov
N.M. Kurayev Children’s Republican Clinical Hospital
Email: Guseinbs@gmail.com
ORCID iD: 0009-0005-0086-6909
MD
俄罗斯联邦, Makhachkala, Republic of DagestanAleksandr Kasev
H. Turner National Medical Research Center for Сhildren’s Orthopedics and Trauma Surgery
Email: an.kasev@aodkb29.ru
ORCID iD: 0009-0006-0802-4949
SPIN 代码: 6193-3610
PhD student
俄罗斯联邦, Saint PetersburgKhushnud Rustamov
Republican Specialized Scientific and Practical Center for Traumatology and Orthopedics
Email: rxx1982@gmail.com
ORCID iD: 0000-0001-8255-4987
SPIN 代码: 3446-0739
MD
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