ARKHANGELSK COUNTY BIRTH REGISTRY AS AN INPORTANT SOURCE OF INFORMATION FOR RESEARCH AND HEALTHCARE


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Abstract

The article presents a short review of already established birth registries worldwide and their value for public health and perinatal medicine. Implementation of Arkhangelsk County Birth Registry (ACBR) is presented in detail. Paper registration form contains information on maternal pre-pregnancy and pregnancy health status, reproductive history, data on folic acid and multivitamin intake as well as alcohol consumption and tobacco smoking before and during pregnancy. Pregnancy outcomes with data on babies' anthropometry and Apgar score are also recorded. For sick liveborn infants, diagnosis and provided treatment are specified. Practical issues of ACBR implementation including the process of transferring data from registration paper forms to computer database are described. From January 1, 2012 to December 31, 2014, 43 327 births were recorded in the ACBR. It comprises 99.6 % of all stillborn and liveborn infants with gestational age 22 and more weeks born in Arkhangelsk County in 2012-2014. Four hundred ninety four births (1.1 %) are multiple. In 2013 and 2014, quality controls demonstrated that 97.3% records in computer database are identical to data in paper registration forms. Ethical and legal issues are discussed. All records in the ACBR are depersonalized. Some practical issues as well as future perspectives of the ACBR for cohort and cross-sectional studies in a field of perinatal epidemiology are also discussed.

About the authors

A A Usynina

Northern State Medical University; UiT The Arctic University of Norway

Email: perinat@mail.ru
кандидат медицинских наук, доцент кафедры неонатологии и перинатологии 163000, г. Архангельск, пр. Троицкий, д. 51

- Jon Oyvind Odland

UiT The Arctic University of Norway; niversity of Pretoria

Кафедра общественного здравоохранения, факультет естественных наук г. Тромсё, Норвегия; Претория, Южная Африка

Zh A Pylaeva

Medical Analytical and Informational Centre

Архангельск

I M Pastbina

Health Ministry of Arkhangelsk County

A M Grjibovski

Northern State Medical University; Norwegian Institute of Public Health; North-Eastern Federal University; International Kazakh-Turkish University

Архангельск; г. Осло, Норвегия; Якутск; г. Туркестан, Казахстан

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