The system of a Federal Cancer Registry

The paper considers the organizational and methodic issues of establishing a Federal Cancer Registry in Russia. A normative and legal base of the registry has been set up; a computer program for the automated system of the register has been elaborated. This program has received approval from the International Agency for Research on Cancer as it meets international standards.
The cancer registry has two levels: regional and federal ones. This program has been introduced regionally in 62 areas of the Russian Federation. Its other 21 regions, organizational work is under way to convert a database into single standard.
The data base of regional registries is used to monitor the implementation of measures to improve medical care to cancer patients.
The Cancer Registry program is drawn up as a module and, if needed, may be augmented by additional information.
This registry gives not only descriptive epidemiological data (morbidity, prevalence, morbidity, survival), but also qualitative on-line information on a wide range of important problems in the functioning of both a branch as a whole and its individual areas. It provides a way of obtaining valid information on used diagnostic methods, the efficiency of standard and newly developed treatment options, such as surgical, radiation, drug, and combination ones.

cancer patients, Federal Cancer Registry