Issues of children with disabilities registered as disabled
- Authors: Sadykova DI1, Solov’ev NA1, Kulakova GA1, Kurmayeva EA1
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Affiliations:
- Kazan State Medical University
- Issue: Vol 101, No 1 (2020)
- Pages: 97-101
- Section: Social hygiene and healthcare management
- URL: https://journals.rcsi.science/kazanmedj/article/view/19447
- DOI: https://doi.org/10.17816/KMJ2020-97
- ID: 19447
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Abstract
Aim. To analyze the medical and social characteristics of children's disability at the stage of primary medical and social care in the polyclinics of Kazan.
Methods. 185 case reports of development of children with disabilities aged 0 to 17 years were analyzed as well as the questionnaires for their parents and 96 case reports of healthy peers of the same age group based on the data from children polyclinics N. 9 and 7 of Kazan. Relative values were calculated to process the results.
Results. The conducted analysis revealed that children with the status of disabled persons were more often born in aged and young mothers, with pathological pregnancy and first birth. In the structure of disability causes, psychiatric disorders and nervous system diseases are prevailing. Disabled children acquire acute diseases more often than their healthy peers that causes additional expanses for the family, including those due to the care for acutely ill child, and requires additional provision with medications. Individual lessons in the rehabilitation of a child with disabilities require additional financial investments from the family budget. We revealed the need for implementation of educational courses for the parents of disabled children due to that every second family did not have specific knowledge and skills of care and rehabilitation, when a child had functional limitations found.
Conclusion. Families with children with disabilities in the status of a disabled child need additional assistance in solving medical and social problems.
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##article.viewOnOriginalSite##About the authors
D I Sadykova
Kazan State Medical University
Author for correspondence.
Email: sadykovadi@mail.ru
Russian Federation, Kazan, Russia
N A Solov’ev
Kazan State Medical University
Email: sadykovadi@mail.ru
Russian Federation, Kazan, Russia
G A Kulakova
Kazan State Medical University
Email: sadykovadi@mail.ru
Russian Federation, Kazan, Russia
E A Kurmayeva
Kazan State Medical University
Email: sadykovadi@mail.ru
Russian Federation, Kazan, Russia
References
- Alʹbitskiy V.Yu. Aktualʹnye problemy sotsialʹnoy pediatrii. (Actual problems of social pediatrics.) Moscow: Soyuz pediatrov Rossii. 2012; 355 p. (In Russ.)
- Bayburina Ya.N. Problema detskoy invalidnosti v Rossii. (Issue of children’s disability in Russia.) Sb. statey Mezhdunarodnoy nauchno-prakticheskoy konferentsii. Ufa. 2017; 15–17. (In Russ.)
- Federalʹnaya gosudarstvennaya informatsionnaya sistema. Federalʹnyy reestr invalidov. (Federal state information system. Federal registry of disabled people.) https://sfri.ru/ (access date: 05.10.2019). (In Russ.)
- Denner V.A., Fedyunina P.S., Davletshina O.V., Nabatchikova M.V. Scientific review of the issue of child disability as a medical and social problem. Molodoy uchenyy. 2016; (20): 71–75. (In Russ.)
- Federalʹnaya sluzhba gosudarstvennoy statistiki. (Federal service of state statistics.) http://www.gks.ru/ (access date: 05.10.2019). (In Russ.)
- FGBU “Federalʹnoe byuro mediko-sotsialʹnoy ehkspertizy” Ministerstva truda i sotsialʹnoy zashchity Rossiyskoy Federatsii. (“Federal Bureau of Medical and Social Expertise” of the Ministry of Labor and Social Protection of the Russian Federation.) Moscow. 2019; fbmse.ru (access date: 04.10.2019). (In Russ.)
- Baranov A.A., Namazova-Baranova L.S., Terletskaya R.N., Antonova E.V. Problems of Children's Disability in Modern Russia. Vestnik RAMN. 2017; 72 (4): 305–312. (In Russ.)
- Sbornik MZ RF. Osnovnye pokazateli zdorovʹya materi i rebenka, deyatelʹnostʹ sluzhby okhrany detstva i rodovspomozheniya v Rossiyskoy Federatsii. (Collection of the Ministry of Health of the Russian Federation. Key indicators of maternal and child health, activity of the child welfare and obstetric care service in the Russian Federation) Moscow. 2019; 169 р. (In Russ.)
- Vsemirnaya organizatsiya zdravookhraneniya i Vsemirnyy bank. Vsemirnyy doklad ob invalidnosti, 2011. (World Health Organization and World Bank. World Disability Report.) http://www.who.int/disabilities/world_report/2011/summary_ru.pdf (access date: 05.10.2019). (In Russ.)
- Ministry of Labor and Social Protection of the Russian Federation. Official website. http://www.rosmintrud.ru/social/invalid-defence (access date: 05.10.2019). (In Russ.)